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IRD Fundamentals Series: Patient Communication

IRD Fundamentals Series: Patient Communication

Delivering an inherited retinal disease (IRD) diagnosis is more than sharing medical facts—it’s about fostering understanding, trust, and hope. In this episode of the EURETINA IME video interview series, Dr. Maximilian Pfau and Prof. Graeme Black share expert strategies for effectively communicating IRD diagnoses to patients.

The discussion covers everything from clearing up common misconceptions and clarifying key terminology to highlighting the indispensable role of genetic counselors in the patient journey. The duo also emphasizes the importance of involving family members, connecting with support groups, and tapping into available resources to empower patients and their loved ones.

Want to deepen your knowledge? Watch this episode and explore the rest of the series to learn more about navigating the complexities of IRDs.


Independent medical education supported by Johnson & Johnson, Neurotech Pharmaceuticals, and Alkeus Pharmaceuticals.